Wednesday, September 29, 2010

The Hunt for the Elusive Diagnosis, Again

Things have been...unbalanced here. We found a new psychiatrist through the in-home program. He raised the Intuniv after seeing Taz literally bouncing off the walls in his office. Taz has been sleepy since in the increase but that effect has worn off before. Hopefully it will again.

The new psychiatrist diagnosed Taz with Mood Disorder NOS with questionable ADHD and PDD-NOS. He recommended seeing a developmental pediatrician to get formal testing done (mostly IQ because the in-home team keeps hinting that Taz may have borderline MR) and to rule out autism spectrum.

But I'm not going to. IQ tests are only accurate once every three years and I'd rather do it right before he enters "real" school where we may need to fight harder for services. Plus, I just don't feel like doing more testing.

There's another diagnosis we are waiting to be evaluated for that we feel pretty certain about Taz having. It's FAS (Fetal Alchohol Syndrome). I confirmed recently that his birth mother drank while she was pregnant. He has some of the facial features and many of the characteristics. A specialist is reviewing his medical file and then will call me for an appointment.

If he has FAS, it doesn't change anything. Not course of treatment, not medications, not school setting, maybe our expectations for the future? But what I feel strongly that it does do is make professionals (teachers, therapists, etc) view Taz more as a victim than a spoiled brat who's mother is too lazy to discipline him (or whatever they happen to believe about mental illness and medication). If he has the label of FAS, I think he'd be treated with more compassion than disdain.

Anyway, that's all that's going on here. He's had a few days in the row that were looking a lot like before we went to the hospital back in July. But with the medication change and school starting I'm waiting to see if things stabilize in a few weeks before I start freaking out.

Sorry I've been negligent about reading other blogs. All my free time is spent on my book, which is almost done by the way. I had two people from my target audience read the first half and they loved it. The next step after I finish it is to send it out to members of my target audience (women who like supernatural romance) then make edits with their advice. Then I'll send it to an editor and make changes she suggests. Then off to the publishers! Oh, and offer it on Kindle. That's where the real money is anyway. Kindle sales have lower overhead than print so you can make more money that way. But I want to see it in print too. And I'm not really expecting to make money on my first book. I just want people to read it and like it. But my second book...that's where I want to see some cha-ching!

1 comment:

  1. Hi J! Been think about you a lot lately. How are you all?

    On a side note, the pdoc now thinks that my taz (aka the baby) is bp as well... Been tough to process. Please feel free to jump back over to the group anytime. We miss you!!!

    Logan's Mommy